This forum is a collaborative initiative by NYSARC Inc and The Hospice and Palliative Care Association of New York State and the State University at Albany's Center for Excellence in Aging, with funding provided by the NYS Developmental Disabilities Planning Council.
The forum was developed in response to a series of training workshops that were organized across New York State to bring together Developmental Disabilities, Hospice and Palliative Care providers and advocates who have an interest in improving end-of-life and supportive care for persons with developmental disabilities, as well as their families and their staff caregivers.
~~ The goal is to improve end-of-life care for persons with developmental disabilities through greater utilization of hospice and palliative care services.
~~ The forum was developed to provide a safe and accessible platform that would encourage a learning dialog to take place between the develpmental disabilities and the hopsoce/palliative care service provider communitites and advocates.
~~The forum features a professionally facilitiated discussion board where registered members are able to post questions and concerns and then recieve answers from experts and/or their peers.
~~ Forum members recieve montly E-Newsletters that provide up to date news, policy information and advocacy opportunities as well as educations resources, practical materials and a current events calendar centering on Hospice, Palliative care and Developmental Disablities issues.
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We believe that every person who cares for, or advocates for persons with developmental disabilities has knowledge, ideas and experiences to share, and that together this can be a thriving community with ideas to improve end-of-life and supportive care for persons with developmental disabilitites and those who are close to them.
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Would you like to join the discussion?
Not yet a member? Joining is easy!
To register for the forum and recieve a complementary subscription to our e-newsletter, please click here.
We have just completed our first round of facilitated discussions and will be posting our 2009 topics within the month - view completed topics below ... and please come back and see what is coming!
Use the links on this page to enter your forum of interest, and/or to find additional information on hospice and palliative care and on additional workshops being offered by NYSARC Inc and the Hospice and Palliative Care Association of New York State
